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Two Babies, One Sac, More Risks

The Triumphs of Monoamniotic Twins

By Teri Brown

Pages:  1  2  3  4  

Janet Grant had no idea what she was facing when she was told the news about her twins being in one amniotic sac. The doctor skirted around the dangers and only said that cord entanglements were a potential problem. They scheduled another ultrasound with a specialist about four weeks away. While waiting for the appointment, Grant began doing some research and found a book that mentioned monoamniotic twins.

"That's when I discovered what we were up against," says Grant. "It quoted that 50 percent mortality statistic, and I dissolved into hysterical tears. Just after I'd started to get excited about having twins, I had to cope with the fact that I might not have any babies at all. I think I sat in the bathroom and cried for an hour straight. I was inconsolable."

Grant tried to find support from others who had been through a monoamniotic pregnancy, but eight years ago, none existed.

"I couldn't find anyone who even knew what this was, much less knew anything about it," says Grant. "My perinatologist admitted to treating three others before me, but would tell me nothing about them other than they became tangled, too. There was really nothing on the Internet then, so I was starved for both information and support. Instead, I leaned most heavily on my wonderful husband. My family was supportive as well, and my boss at work was a huge help as well. He had been through a high-risk pregnancy, and he bent over backwards to accommodate whatever I needed to do – including allowing me to work at home."

"I promised myself that if I ever had the chance to help another mother going through this, I would do everything in my power to see that she didn't feel as alone as I did," says Grant.

Support for Parents
In 1998 when she had a chance to help start a monoamniotic support and information site, she jumped at it. Grant, along with many other parents with monamniotic twins, volunteers her time and energy to provide support for other parents who are going through the same excitement and fear that she went through.

The group began as a simple e-mail list group and then burgeoned from there into a comprehensive site, www.monoamniotic.org

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