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Fibular Hemimelia
Diagnosis, Treatment and Support
By Jacqueline Bodnar
They opted for the latter and, after doing a lot of research, boarded a plane to Baltimore to take their daughter to the International Center for Limb Lengthening at Sinai Hospital, where Dr. Dror Paley would perform the surgery. After they complete this procedure, she will need another operation, somewhere around the age of 10.
"Some children have an almost unnoticeable deformity, with only mild hypoplasia of the fibula," Dr. Iobst says. "These children may not even know they have the condition and live perfectly normal lives. Others may have such significant deformity that amputation is the best treatment option. Most children are positioned somewhere between these two extremes, and will require surgical management of their limb-length discrepancy and any associated deformity."
He explains that surgical treatments depend on the child's abnormality. However, the most common surgeries include limb lengthening and correction.
"Parents need to find a support group," Schroeder says. "It's an immeasurable help to talk to other parents."
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