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Complications & Cesareans

Our Baby with Congenital Cystic Adenomatoid Malformation

Short Stories About Pregnancy

I am currently pregnant with our third child. During a routine ultrasound at 24 weeks the ultrasound technician told us that our son had something wrong with his chest. My OB had no idea what it could be so he sent me to a perinatologist the very next day to get a diagnosis. At this point my brain was going 100 miles an hour. I was so worried.

When he told us that our son had a tumor on his left lung, my husband and I were so devastated. I couldn't believe the news. Immediately I thought the worst, that he was going to die and how badly that would hurt and my heart would break.

The one good thing about a CCAM diagnosis is that 90 percent of cases are good and the baby can be delivered and undergo surgery within the first year.

Then at 24 weeks the tumor/cyst was 2.2 cm and now at 32 weeks it has shrunk to 1.7 cm. How relieved we are to hear that. It looks like our son will be fine and he expects no complications after birth. I will need to follow up with a pediatric surgeon after birth. I am 7 weeks away from my due date. Wish us the best.

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Our Baby with Congenital Cystic Adenomatoid Malformation

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Amit says
December 13, 2009

Hi,
I am in same boat as you are. Last week doctor confirmed CCAM and its our first child (girl). Reaally tensed, so please share whatever update you gets with me at ak12@rediffmail.com

Amit says
December 13, 2009

our child also diagnosed with CCAM and I am 21 weeks of pregancy. Doctor as for regualar checkups now.

Anonymous says
November 19, 2009

I know exactly what your going through. Our stories are nearly the same. I am 23 weeks and 4 days pregnant with a little girl that I found out yesterday has CCAM..my mind is so mixed up and I want to do nothing but lay on my butt and make sure she is healthy...even though I know there is nothing I can do. The doctor that I saw in Springfield Illinois was very short worded about this. I have done some research and I am devestated by what I have learned. This is also my third and my first baby girl...please email me some things you have learned about this so little known malformation! My address is nikki62301@yahoo.com..thank you so much

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