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Pregnancy can be a stressful time for some people, for a variety of reasons,
one of which is wondering if your child will be born with any type of abnormality.
Ultrasound appointments during pregnancy can be a roller coaster ride. On the one hand, you want to see how the baby is doing and maybe even get a sneak peek at the gender. On the other hand, you know in the back of your mind that the reason they are doing the ultrasound is to make sure that everything is OK and that the baby is developing normally.
Fibular hemimelia is the most common long-bone congenital absence or hypoplasia. |
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The reality is that while most people will learn that their fetus is developing as should be, others are told something different. Some parents learn through their pregnancy ultrasound that the baby's fibula, the outer smaller bone between the knee and ankle, is either absent or partially absent. This condition is referred to as fibular hemimelia.
If your baby is diagnosed with this condition, it can leave you with a lot of questions: What exactly is it? How did it happen? What does it mean in terms of the limitations and treatment that your child may experience as she grows? Knowing the answers to some of these questions will help put the issue a little more into perspective so you are better able to set your child on the path to success, despite the condition.
Hello concerned parents. I am a 28 year old male in Toronto who was born with this condition. I have experienced about 10 operations as it related to "FH". I have experienced many things in life and am thinking about writing a book about the experiences as a youth living with this condition. I have spoken to my DR about it as well and she may be interested in contributing.
Because this is a 1 in a million condition, there are not many families effected by this - but enough for a book to be put together so that when the kids become teens and have questions, they have that resource.
I will look again to see if you responded, i hope to connect.
best wishes
Hi my brother has fibular hemimelia, he is 14 now and he wears a prosthetic. I feel weird talking on his behalf, but I have seen him grow up, and this condition has not slowed him down at all. He plays baseball, does karate, swimming, and has a lot of self-confidence. It helped him and my parents a lot talking to other families, I would suggest networking as much as possible and possibly meeting up with another family (which we did) that was a great experience for my parents and my brother.
Looking for others with same condition.
Hello. My name is Summer. I have a 7-year-old daughter named Bayley. She has fibular hemimelia and has a prostetic leg. She is just now starting to say things about it. I am looking for others with this condition. It is nice to know you are not alone at times.
Content provided on this site is for educational purposes only and should not be construed to be medical advice, diagnosis or treatment.
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