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Pregnancy can be a stressful time for some people, for a variety of reasons,
one of which is wondering if your child will be born with any type of abnormality.
Ultrasound appointments during pregnancy can be a roller coaster ride. On the one hand, you want to see how the baby is doing and maybe even get a sneak peek at the gender. On the other hand, you know in the back of your mind that the reason they are doing the ultrasound is to make sure that everything is OK and that the baby is developing normally.
Fibular hemimelia is the most common long-bone congenital absence or hypoplasia. |
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The reality is that while most people will learn that their fetus is developing as should be, others are told something different. Some parents learn through their pregnancy ultrasound that the baby's fibula, the outer smaller bone between the knee and ankle, is either absent or partially absent. This condition is referred to as fibular hemimelia.
If your baby is diagnosed with this condition, it can leave you with a lot of questions: What exactly is it? How did it happen? What does it mean in terms of the limitations and treatment that your child may experience as she grows? Knowing the answers to some of these questions will help put the issue a little more into perspective so you are better able to set your child on the path to success, despite the condition.
My daughter Macy had fibular hemilia when she was born. We had no idea until the day she was born she had this. On her right leg she had four toes, no fibula, missing toe bones and a short leg. She had her foot amputated at 13 months old. She is doing great! She gets a new leg approx. every six months. She is in dance class and is a VERY active three year old! One surgery was hard to go through! I am so glad we didn't have to go through multiple surgeries of lengthening. Glad we chose the prosthetic route. It was the hardest decision we ever had to make! We prayed a lot and Hopefully made the best decision for our daughter! If anyone wants to talk please email me tonyaraethomas@msn.com God Bless!
MY 2 1/2 YEAR OLD MAKANI HAS FH SHE IS GOING TO DO LENGTHENING IN ABOUT 2YRS I'M ON THE YAHOO GROUP IF ANYONE EVER WANTS TO CHAT MY E-MAIL IS ALWAYZ OPEN.
AMY
My daughter had limb lenghtening when she was 4 and is doing wonderful. We expect another lenghtening when she's 11 or so. Best thing we ever did. Very mild FH.
Hi, I'm the mom of an 8yr old boy born with pretty severe FH. He was not a candidate for limb lengthening and had amputation surgery when he was 10 mos old. He is doing GREAT! He plays football, baseball and golf and pretty much anything else he wants to. I would be more then willing to share our experiences or anwer any questions. It can be scary since the information is so diverse. My email address is kelliknotts@yahoo.com. Please feel free to contact me.
Dr. Dror Paley's contact information has changed. He is no longer at Sinai Hospital in Baltimore. He is director of the Paley Advanced Limb Lengthening Institute in West Palm Beach, Florida. He can be reached at dpaley@lengthening.us or toll free 877 765-4637
Content provided on this site is for educational purposes only and should not be construed to be medical advice, diagnosis or treatment.
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